Workshop on Incorporating the Patient Perspective into Patient-Centered Outcomes Research
Meeting Materials
Day 1
- Day 1: Introduction and Overview
- Eliciting Patient Perspective in Patient-Centered Outcomes Research: A Meta-Narrative Review and Synthesis of Evidence (Hassan Murad presentation)
- PCORI Expert Interviews Project: Best Practices for Patient Engagement in Research (Pam Curtis presentation)
- Integrating Patients’ Voices in Study Design Elements with a Focus on Hard-to-Reach Populations (Daniel Mullins presentation)
- Day 1: Discussion
Day 2
- Day 2: Introduction and Overview
- Patient-Centered Outcomes Research: Standards for the Development and Selection of Patient Reported Outcome Measures (Sarah Acaster and Andrew Lloyd presentation)
- Enhancing the Patient’s Voice: Draft Guidance on Minimum Standards for the Design and Selection of Patient-Reported Outcomes (PRO) Measures for use in Patient Centered Outcomes Research (Zeeshan Butt and Bryce Reeve presentation)
- Day 2: Discussion and Workshop Appendix