Patient-Centered Outcomes Research Institute Will Hold National Patient and Stakeholder Dialogue
WASHINGTON, D.C. – The Patient-Centered Outcomes Research Institute (PCORI) will hold a National Patient and Stakeholder Dialogue on February 27 as part of its effort to obtain feedback on its first draft National Priorities for Research and initial Research Agenda.
The event, to be held at the National Press Club in Washington, DC, from 9:30 am to 5:00 pm, will include three-and-a-half hours of public comment by individuals attending in person and by phone. It also will feature two moderated discussion panels of patient and caregiver advocates, clinicians and other stakeholders.
Individuals can register online at www.pcori.org to attend in person, by phone or via webcast. More than 500 individuals already have done so. Due to the level of interest, registration to provide comment in person is now closed, although efforts are being made to accommodate as many additional commenters by phone as possible. Comment on the draft national priorities and research agenda also may be submitted at any time now through March 15 through the PCORI website.
“PCORI is committed to being a truly patient-centered organization,” said PCORI Executive Director Joe Selby, M.D., M.P.H. “This event provides us an opportunity to hear in person what patients and other stakeholders want and need from health research. We are excited by the public’s response to this event and look forward to the discussions and comments.”
Input from the National Patient and Stakeholder Dialogue, feedback from additional forums, including focus groups, and formal public comments received through PCORI’s website, all will be carefully considered in modifications to the draft research priorities and agenda. The PCORI Board of Governors must adopt the priorities and agenda before it can issue primary funding announcements.
Health Affairs Editor-in-Chief Susan Dentzer, will moderate two one-hour discussion panels during the morning portion of the event.
The Patient and Caregiver Advocate panel includes:
- Marc M. Boutin, Executive Vice President and Chief Operating Officer, National Health Council
- Otis W. Brawley, MD, Chief Medical Officer, American Cancer Society
- Adolph Falcon, Senior Vice President, National Alliance for Hispanic Health
- Andrew Sperling, Director of Legislative Advocacy, National Alliance on Mental Illness
- Stuart Spielman, Senior Policy Advisor and Counsel, Autism Speaks
The Clinician and Other Stakeholder panel includes:
- Andrew Baskin, MD, National Medical Director for Quality and Provider Performance Measurement, Aetna
- Karen Daley, PhD, MPH, RN, FAAN, President, American Nurses Association
- Helen Darling, President and Chief Executive Officer, National Business Group on Health
- Ardis Hoven, MD, Member, Board of Trustees, American Medical Association
- Richard Smith, Senior Vice President for Policy, Research and Strategic Planning, PhRMA
- Glen Stream, MD, MBI, President, American Academy of Family Physicians
The panels will be preceded by a brief presentation from PCORI on the draft National Priorities and Research Agenda. Following the afternoon public comment period, members of the PCORI Board of Governors will provide observations on the feedback received during the day.
National Patient and Stakeholder Dialogue Event Schedule
The National Press Club, 529 14th St., NW, 13th Floor, Washington, D.C.
Monday, February 27, 2012 (All Times EST)
9:30-9:45 Welcome and Introduction by PCORI Executive Director Joe Selby
9:45-9:55 Overview of PCORI’s input process on the draft National Priorities for Research and Research Agenda
9:55-10:15 Overview of PCORI’s draft National Priorities for Research and Research Agenda
10:15-11:00 Patient and Caregiver Advocate Discussion Panel
11:00-11:15 Break
11:15-12:00 Clinician and Stakeholder Discussion Panel
12:00-1:00 Lunch (provided)
1:00-4:30 Public comment (in person and by phone)
4:30-4:55 Observations from PCORI Board Members
4:55-5:00 Closing Comments by PCORI Executive Director Joe Selby