Former Advisory Panel Member

Cindy Luxhoj, MUP

Represented: Patients, Caregivers, and Patient Advocates

Conflicts of Interest:

As of March 21, 2017

  • National Organization for Rare Diseases, employee of organizational member
  • Childhood Liver Disease Research Network, Patient Advocacy Group Committee, co-chair  

Luxhoj served as Co-Chair of the Rare Disease Advisory Panel from Fall 2017 - Fall 2020.