Heather Adams, PhD

Represented: Researchers

Conflicts of Interest:

As of September 2, 2021:

• Neurogene, Consultant
• Neurogene, Sponsored Research
• Amicus, Consultant
• Amicus, Sponsored Research
• Beyond Batten Disease Foundation, Consultant
• Theranexus, Consultant
• Regenex Bio, Sponsored Research
• Biogen, Advisory Board member, Compensated
• Biogen, Sponsored Research
• Batten Disease Support & Research Association, Sponsored Research, Principal Investigator, Uncompensated
• Tourrette Association of America, Educational Grant, Principal Investigator, Uncompensated
• National MPS Association, Faculty
• National MPS Association, Delphi Panel Participant
• National Institutes of Health, Sponsored Research, Co-Investigator
• Critical Path Institute, Consultant
• Up to Date, Royalty Payments for a Book Chapter
• ISPOR, Task Force Member, Uncompensated
• CURE Childhood Cancer Association, Board Member, Spouse

Adams served on the Advisory Panel on Rare Disease from August 2024 - August 2025.