Former Advisory Panel Member

Marc Boutin, JD

Represented: Patients, Caregivers, and Patient Advocates

Conflicts of Interest:

As of November 3, 2016:

Financial Associations

  • Each of the organizations below is a contributing sponsor for National Health Council activities. As the Chief Executive Officer, one of my responsibilities is overseeing financial management and operations.
    • Alpha-1 Foundation
    • The ALS Association
    • Alzheimer's Association
    • American Autoimmune Related Diseases Association
    • American Cancer Society
    • American Diabetes Association
    • American Foundation for Suicide Prevention
    • American Heart Association
    • American Kidney Fund
    • American Liver Foundation
    • Amputee Coalition
    • Arthritis Foundation
    • Asthma and Allergy Foundation of America
    • Barth Syndrome Foundation
    • Colon Cancer Alliance
    • COPD Foundation
    • Foundation for Ichthyosis and Related Skin Conditions
    • Foundation for Ichthyosis & Related Skin Types
    • Huntington’s Disease Society of America
    • Hydrocephalus Association
    • Immune Deficiency Foundation
    • The LAM Foundation
    • The Leukemia & Lymphoma Society
    • LIVESTRONG Foundation
    • Lupus Foundation of America
    • March of Dimes Birth Defect Foundation
    • The Marfan Foundation
    • Myasthenia Gravis Foundation
    • The Myositis Association
    • National Alopecia Areata Foundation
    • National Down Syndrome Society
    • National Eczema Association
    • National Foundation for Ectodermal Dysplasia
    • National Hemophilia Foundation
    • National Kidney Foundation
    • National Multiple Sclerosis Society
    • National Osteoporosis Foundation
    • National Psoriasis Foundation
    • Osteogenesis Imperfecta Foundation
    • PKD Foundation
    • Prevent Blindness
    • Prevent Cancer Foundation
    • Resolve, The National Infertility Association
    • Sjogrens Syndrome Foundation
    • Spina Bifida Association
    • Us TOO International Prostate Cancer Education & Support Network
    • WomenHeart: The National Coalition for Women with Heart Disease

Personal Associations

  • 2016 Innovation & Value Initiative (IVI) Panel of Health Advisors (member)
  • 2015-present Bipartisan Policy Center Advisory Committee - FDA: Advancing Medical Innovation Initiative (member)
  • 2015-present PCOR Training for “Non-Usual Suspects”: A Program for Rare Disease Patient Advocates Patient Advisory Committee (Member)
  • 2014-present Patient Focused Medicines Development (Member)
  • 2014-present FasterCures Benefit-Risk Advisory Council (Member)
  • 2014-present Patient-Centered Research for Outcomes, Effectiveness, and Measurement (PROEM) External Advisory Committee (member)
  • 2013-present MDIC Patient-Centered Benefit-Risk Steering Committee (Member)
  • 2013-present Sanofi Partners in Patient Health Global Council (Member)
  • 2013-present PCORI Advisory Panel on Patient Engagement (Member)

Boutin served as a member of the Advisory Panel on Patient Engagement from April 2014 - April 2017.